Family fighting for cure after daughter's batten disease diagnosis
2:32
Family fighting for cure after daughter's batten disease diagnosis
8 months ago
CBS News
Batten Disease
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nationwidechildrens.org
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•• Absence Seizures •• Absence seizures, sometimes referred to as “petit mal” seizures, are another common type of seizure experienced by children with CLN1. According to our survey data, 57% of the CLN1 population has them. Absence seizures are generalized seizures, meaning they affect both sides of the brain at the same time. They cause brief, sudden lapses in awareness, often with episodes of staring blankly. Because of this presentation, absence seizures are often mistaken as a child daydrea
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•• Absence Seizures •• Absence seizures, sometimes referred to a…
39.6K viewsFeb 10, 2021
FacebookCLN1 Batten Disease, Hope for a Cure
As a bereaved Batten father, Chris Hawkins gives back to the Batten disease community by assisting with BDSRA’s virtual Grief Chats. Your donations to BDSRA make our virtual programming possible, providing much-needed support to both bereaved and actively caring families affected by Batten disease. Your support means families aren’t alone in battling this devastating disease. Join Chris in the fight for treatments and a cure for Batten disease: https://ow.ly/po8U50XIEiM Mail checks to: BDSRA Fou
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As a bereaved Batten father, Chris Hawkins gives back to the Batten …
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FacebookBDSRA Foundation
Batten disease: Fears drug treatment may be withdrawn
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