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Dasha being her silly self in a Spider-Man mask 🕸️ she's my little goofball. despite having EB she is full of smiles and giggles. Dasha and her brother Emeryck live with a rare genetic skin condition called junctional epidermolysis bullosa. it's caused from mutated genes that affect the skins protein. it's commonly called butterfly skin or butterfly disease even though eb is NOT a disease. it is not contagious. Their skin is incredibly delicate and any type of friction or bump can lead to the s
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